Earlier this month the first two major studies regarding the controversial proposal that chronic cerebrospinal venous insufficiency (CCSVI) is a cause of multiple sclerosis (MS) were published.
Both refuted the findings, being the first negative medical evidence regarding it published to date, and since then the internet has been awash in renewed anger.
It is not just that it is supposed to take a more sophisticated duplex ultrasonography* (another word for duplex ultrasound), but the problem also lies in that it has been known for over a hundred years that focal MS lesions tend to develope around cerebral veins that are thought to be the portal for inflammatory cells targeting the myelin.
Dr. Zamboni et al. are saying that it is a problem with the cerebral veins that are causing the MS, not MS causing the problem with the veins.
Since the “break” in the story last year, thousands of MS patients have flocked to various places all across the world receiving experimental endovascular angioplasty or stenting and the internet has been flooded with people arguing over the merits of the study.
Hundreds swear by it, offering up how they feel as proof positive, and others say it the “placebo affect” soon to wear off. More will tell of the thousands of stories they’ve heard where it’s worked and more will then tell of how some have gone to have it done only to turn around to have a stent pulled out of their heart or had it taken out because it became dislodged. Where upon it then goes into a debate over angioplasty v.s. stenting and the merits of the doctors who have done it.
Sometimes the anger gets the best of both parties to the point where sarcasm and ugly words are used and if it’s in a monitored online “room”, the conversation is then closed or even pulled from the boards.
Believe it or not, it has even pulled friends apart.
“I used to chat with another person who has MS online just about every other day,” says Rick Yasime from Lima. “Not just about our problems with this disease, but about all kinds of things, even politics if you can imagine, but for some reason we could just not see eye to eye when it came to CCSVI. A few weeks ago, when we heard about that one doctor calling CCSVI clinics theives, we just said some things that I doubt we would have said face to face and we haven’t talked since.”
Everyone who has MS, or is close to someone who has the disease, are “all ears” when it comes to news about CCSVI and no doubt this will not change any time soon. More studies trying to replicate Dr. Zamboni’s findings are still in the works and their findings will be interesting to see.
Not only for what will be found but also for how it will be received.
For more info: for those who live in Lima, Ohio, the Northwestern Ohio MS Chapter can be reached at: 401 Tomahawk Drive , Maumee, OH at (419) 897-7263. They are located approximately an hour and a half from Lima, Ohio and 45 minutes from Findlay, Ohio. For directions please click here at Google Maps.
Previous Article Regarding CCSVI and Dr. Zamboni: Dr. Zamboni Says CCSVI Debate Good
For more MS Examiners of Interest:
Colleen Putnam: http://dampfang.com/multiple-sclerosis-in-albany/colleen-putnam
Mike Szymanski: http://dampfang.com/multiple-sclerosis-in-national/mike-szymanski
Dr. Miriam Franco: http://dampfang.com/multiple-sclerosis-in-philadelphia/miriam-franco
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